Let’s hear from the authors who wrote this 2018 article published in BMJ Open
“The decision to publish our research in an open access format was driven by a commitment to maximise the accessibility and impact of our findings.”
This project involved a multidisciplinary diagnostic team of clinicians in paediatrics, neuropsychology, speech pathology and occupational therapy, as well as expertise in Aboriginal research, epidemiology and database and project management. The team was supported by a consumer and community group, a steering group and a reference group.
What inspired you to pursue research in this particular area?
Our research stemmed from a desire to address a significant gap in knowledge regarding the prevalence and impact of FASD within vulnerable populations. In particular, we were seeing children with behaviours associated with neurodiversity such as FASD entering the justice system without their developmental needs understood. We recognised the potential implications of undiagnosed FASD on the lives of youth in detention as an important public health issue. There was some evidence about FASD prevalence in justice from other countries but not yet from our own. Our team’s interest in justice and FASD was already established through FASD research and advocacy with justice professionals. Given current misunderstandings and lack of knowledge about FASD, we wanted to obtain evidence on which to base advocacy for FASD and youth justice.
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